Patient-oriented research "refers to a continuum of research that engages patients as partners, focusses on patient-identified priorities and improves patient outcomes." (CIHR Strategy for Patient-Oriented Research)
Community-based research is an "approach that involves active participation of stakeholders, those whose lives are affected by the issue being studied, in all phases of research for the purpose of producing useful results to make positive changes." (Nelson, Ochocka, Griffin and Lord, 1998, quoted by Community-Based Research Canada)
Both terms address meaningful engagement of the public in research, beyond simple consultation; doing research with people rather than for or to people. Increasingly, granting agencies require public or patient involvement on funded projects.
A wide range of language is used to describe various aspects of public involvement in research or service delivery. Besides patient-oriented research (POR) and community-based research (CBR/CBPR), you may encounter these terms:
A variety of terms may describe patients or the public, including:
*While "stakeholder" is a commonly used term in health research, it has negative connotations to many Indigenous peoples:
This article offers a helpful overview of common terms in use:
Islam, S., Small, N. An annotated and critical glossary of the terminology of inclusion in healthcare and health research. Res Involv Engagem 6, 14 (2020). https://doi.org/10.1186/s40900-020-00186-6